When my white cell count went into overdrive, and my UNC team started talking transplant, I headed to Ohio and Dr. John Byrd. Dr. Byrd saved my life once already, and he had lots of ideas that didn't include the harrowing prospect of a bone marrow transplant. First, there was terrible news. Newave's LP-118 clinical trial was closed, but the Byrdman called Dr. Stephen Anthony, Newave's Chief Medical Officer, pleading my case. The first time Dr. Byrd saved my life was in a clinical trial at Ohio State over ten years ago. He argued for adding one more sick patient to Newave Pharma's trial.
Newave's LP-118 clinical trial focuses on patients with various relapsed blood cancers. I have chronic leukemia that relapsed almost immediately after my last treatment, which is so scary. I got treated nine times. Each treatment usually bought me three to five years of remission, but not my previous treatment. Shortly after finishing treatment, I was the sickest I've ever been.
My rapidly accelerating white blood count forced me against the wall. I wasn't sure what to do. UC's clinical trial was closed, and I was too sick to wait, but the Byrdman did his magic. I got admitted to Newave's LP-118 trial. From what Dr. Byrd told me when I saw him last, and I'm only a few days from seeing him again, most LP-118 patients are experiencing good results with Newave's Bruton tyrosine kinase (BTK) inhibitor. And I'm glad to be one of them.
My counts have moved from "scary" to "a complete hematological response," according to Dr. van Deventer at UNC. Chemo is so much easier now. I take three pills a day, and the side effects were mild in the first month and are mostly gone now. When I've asked how long I'll need to take these pills, it keeps sounding like the rest of my life. That's an easy trade since I wouldn't have a life without them.
"Playing for time" has worked so far thanks to exceptional care at Duke, Ohio State, UNC, and now the University of Cincinnati. This last relapse scared me enough to focus on "getting my affairs in order," and that's why cancerART exists - to help give back and say thanks for my life.